Thursday, March 13, 2014

Peyronie's Disease: WTF Else is Gonna Happen???

About 8 to 10 weeks ago (see previous post).  I woke with one of my usual only moderately hard morning erections, and the damn thing was curved all the way up to touch my belly.  I finally got an appointment with my urologist in mid-February, and he detected a definite plaque (scar tissue) inside the ol' weenie that is causing it to curve.  He referred me to a urologist specializing in Peyronie's Disease. That doc said he did not believe the Edex had caused it, that I probably injured my member during sex at some point (and I do remember being bent bent double a time or two when I slipped out unexpectedly.  The injury supposedly happens usually when you are doing it in a woman-on-top position).

Anyway, this doc deals with Xiaflex, a new collagenase drug that is injected into the plaque to cause a break in it so the penis can be stretched to separate the parts of the plaque so it no longer "tethers" the penis.  He said, however, that at best it generally improves the curvature by only 33%, and that would not be much help to me, and people who already have ED are not good candidates for Xiaflex because it can make the ED worse.  Then, too, Xiaflex currently costs a whoppin' $3300.00 per vial, with as many as 8 vials sometimes necessary to complete the treatment!  Not sure if insurance would cover any of that, since the drug is sort of experimental.

His bottom line recommendation, if I cannot live with the curvature, is to get penile implants.  (It's a little too much for me to think about right now, so you'll just have to Google penile implants.) My Peyronie's is not stable yet, so he has me taking a couple of prescription drugs to mitigate it as much as possible until it does go from acute to chronic.  Supposedly, 10 to 12% of patients improve on their own, about 40% get worse, and the remaining bunch see no change at all.

Oh, joy....